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News

Latest developments in our charity and news on
research into pulmonary fibrosis.

Please get in touch at press@actionpf.org for any press/media enquiries.

All Support Research Fundraising Charity News Press Releases Public Affairs
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Public affairs

APF’s report exposes serious failings and a ‘postcode lottery’ in pulmonary fibrosis care

March 11, 2026
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Charity news

APF join forces with Irwin Mitchell to shine a light on work-related pulmonary fibrosis

March 05, 2026
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Support

The APF Support Line: here to help

February 23, 2026
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Charity news

Announcing our new 5-year strategy 2026

January 15, 2026
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Press releases

Action for Pulmonary Fibrosis launches new 5-year strategy to expand support and accelerate research

January 15, 2026
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Research

APF funded researcher wins prestigious award

December 19, 2025
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Charity news

Steve Jones becomes our new Patient President

November 17, 2025
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Press releases

Action for Pulmonary Fibrosis appoints its first Patient President

November 17, 2025
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Charity news

Thank you and farewell to Steve Jones and Beckie Lang

November 10, 2025
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Research

Tackling pulmonary fibrosis head-on: APF funds two innovative research projects

November 10, 2025
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Fundraising

Go the Distance 2025

November 04, 2025
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Fundraising

Louise's Zipwire Challenge

October 14, 2025
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Research

APF Conference Award Winners Present Research at Global ERS Congress

September 29, 2025
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Research

Meet the winners of our 2025 Summer Studentships!

July 22, 2025
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Research

Phase 2b trial for IPF cough reports positive topline results

June 06, 2025
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Research

The power of patient involvement in research

June 04, 2025
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Public affairs

The 2025 PF State of the Nation Survey is now open!

May 21, 2025
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Research

Advancing Respiratory Research: APF Grant Winners Present at Leading International Conference

May 21, 2025
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Press releases

Results of landmark clinical trial offer new hope for people living with pulmonary fibrosis

May 19, 2025
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Research

Landmark Clinical Trial Offers New Hope for People Living with Pulmonary Fibrosis

May 19, 2025
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Research

New insights into lung repair: APF Conference Award supports PhD student to present IPF research internationally

April 28, 2025
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Research

Advancing Pulmonary Fibrosis Research: Insights from 2024 Summer Studentships & Exciting Opportunities for 2025

April 15, 2025
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Research

New APF funding programme for pulmonary fibrosis research

April 09, 2025
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Fundraising

Corporate supporters double fundraising total through matched giving

March 21, 2025
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Charity news

Action For Pulmonary Fibrosis appoints new Director of Fundraising & Communications

March 19, 2025
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Research

New insights into lung infections in pulmonary fibrosis

March 14, 2025
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Research

Managing your lung health during Ramadan: expert insights & practical tips

March 10, 2025
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Research

New report highlights the challenges for idiopathic pulmonary fibrosis care in the UK

March 07, 2025
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Research

Apply for a 2025 BALR Summer Studentship

March 04, 2025
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Research

FIBRONEER™-ILD: Clinical trial results update and what this means for people living with PPF

February 11, 2025
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Fundraising

AIS Raises Over £5,500 for Action for Pulmonary Fibrosis in 50km walking challenge

February 10, 2025
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Public affairs

Call on your MP to improve PF services and address care inequalities in your area

January 16, 2025
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Research

Research rendezvous: Your donations are making a difference to pulmonary fibrosis scientists in the UK

December 06, 2024
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Public affairs

Exciting changes ahead for NHS: APF chimes into NHS change consultation

December 04, 2024
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Public affairs

Putting the spotlight on improving PF care in Parliament

November 25, 2024
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Fundraising

The Grampian Support Group Raises Funds For Research

November 21, 2024
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Research

Meet the scientist behind the research: Dr Kerri Johannson

November 06, 2024
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Research

Fibroneer-IPF: Clinical trial results and what this means for people living with PF

October 15, 2024
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Public affairs

‘Business Case Toolkit’

October 01, 2024
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Charity news

Action for Pulmonary Fibrosis appoints new CEO

September 19, 2024
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Fundraising

In memory of James Douthwaite

September 17, 2024
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Research

Hormones, genes and lung health screening - meet our Conference Award winners

September 05, 2024
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Press releases

Johnnie Walker voices campaign to spot the signs and symptoms of lung scarring disease

August 31, 2024
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Research

Meet the winners of our 2024 Summer Studentships!

August 23, 2024
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Fundraising

Jenny takes on the Cotswold Way Ultra Challenge

August 14, 2024
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Charity news

Alec's MBE for Services to Cricket and to People with Interstitial Lung Disease.

July 15, 2024
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Support

Men's Health Week - we're here to support you

June 14, 2024
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Fundraising

Michelle's Kiltwalk Challenge

June 14, 2024
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Fundraising

Remembering Pops with new heights this Father’s Day

June 11, 2024
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Research

APF launches new research Study Finder

May 20, 2024
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Public affairs

Social Deprivation and Idiopathic Pulmonary Fibrosis (IPF)

May 10, 2024
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Charity news

APF is here for everyone affected by pulmonary fibrosis.

May 03, 2024
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Fundraising

Greg Runs 5K Every Day for APF

April 30, 2024
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Research

APF welcomes new research centre for rare lung diseases

April 26, 2024
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Charity news

Transforming PF care starts here

April 17, 2024
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Research

Ramadan: fasting and antifibrotic medications

April 16, 2024
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Support

Upcoming webinar: Building a business case to improve ILD Services

April 12, 2024
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Research

Meet the Scientist: How I got involved in Pulmonary Fibrosis research, a medical student’s perspective

April 12, 2024
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Research

APF announces new research fellows to unravel the genetics of pulmonary fibrosis

April 04, 2024
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Charity news

Louise Wright CEO to step down from the charity

March 27, 2024
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Research

Apply for a BALR Summer Studentship

March 12, 2024
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Research

Research Update: Results from the PAciFY study looking at IPF-cough

January 26, 2024
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Research

Meet the scientist Dr Anna Duckworth: Pulmonary fibrosis, telomeres and me

January 20, 2024
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Research

Study Update: IPF COMFORT: A clinical trial investigating the effects of orvepitant on IPF cough

January 13, 2024
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Charity news

Remembering Sarah Weir OBE

December 22, 2023
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Support

Support Over the Christmas Period 2023

December 11, 2023
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Charity news

People with lived experience of PF at the heart of survey set to influence change

December 07, 2023
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Research

DEMISTIFI Study Webinar: What is BIG DATA? The use of patient health data in research

November 22, 2023
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Research

Short Patient Survey for REMAP-ILD: Have your voice heard

November 21, 2023
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Research

Meet the Scientist: Dr Laura Fabbri - APF Research Conference Awardee

November 21, 2023
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Research

Research results: the MADIET clinical trial

November 14, 2023
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Press releases

New Chair of Trustees for Action for Pulmonary Fibrosis

November 14, 2023
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Research

Meet the scientist: Dr Dominic Sykes - APF Conference Awardee

November 07, 2023
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Fundraising

Join TeamAPF for the London Winter Walk

November 03, 2023
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Charity news

APF in Parliament: a first step towards change

November 02, 2023
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Research

Meet the scientist behind the research: Dr Brintha Selvarajah

October 06, 2023
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Press releases

New survey reveals staggering lack of awareness of killer lung scarring disease that's on the rise

September 04, 2023
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Research

Meet the scientist behind the research webinar: Dr Richard Allen

August 29, 2023
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Fundraising

Frank cycles from Lands End to John o'Groats

August 24, 2023
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Research

East Midlands Interstitial Lung Disease Research Alliance (EMIRA) Meeting

August 23, 2023
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Charity news

APF welcomes NHS plans to fast-track testing for respiratory conditions like pulmonary fibrosis

August 03, 2023
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Support

Advice about possible courier issues affecting access to anti-fibrotics

July 19, 2023
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Charity news

How can healthcare services turnaround pulmonary fibrosis care?

July 17, 2023
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Support

2023 APF patient survey: Thank you!

July 13, 2023
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Charity news

APF wishes Amy Price the best of health after her lung transplant

July 07, 2023
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Research

Meet the Scientist: Georgie Massen APF Conference Awardee for ATS

July 07, 2023
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Research

Research update: Results from ZEPHYRUS-1 - A Phase 3 Clinical Trial

June 27, 2023
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Research

Meet the scientist behind the research: Dr Adam Byrne

May 27, 2023
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Fundraising

In memory of Allan Glover

May 22, 2023
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Fundraising

Caitlin runs the London Marathon

May 19, 2023
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Research

Meet the scientist behind the research: Dr Joe Jacob

May 04, 2023
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Research

Virtual Education Event: Finding effective treatments faster for patients with lung scarring

April 05, 2023
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Fundraising

Walking in memory of Les Kennedy

March 29, 2023
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Press releases

More people living with IPF in Scotland to benefit from anti-fibrotic medication

March 13, 2023
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Fundraising

Running in memory of Graham Brown

March 09, 2023
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Fundraising

Over £750 donated in memory of John Green

February 17, 2023
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Support

Support groups spread across Scotland

February 06, 2023
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Charity news

APF Responds to Government Announcement

February 02, 2023
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Research

What are patient registries and how do they help healthcare professionals to support patients and develop treatments?

February 01, 2023
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Support

Running a PF support group: Q&A with a group leader

January 24, 2023
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Fundraising

John Raises Funds For Research

January 13, 2023
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Support

The Cost of Living Crisis- Help and Resources

December 21, 2022
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Support

The Cost of Living Crisis- Advice for Those Using Oxygen Concentrators

December 21, 2022
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Press releases

Thousands of patients with terminal lung scarring given access to drugs that could prolong their lives

December 14, 2022
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Charity news

#OneVoiceILD

December 13, 2022
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Press releases

Action for Pulmonary Fibrosis BBC TV Lifeline Appeal

December 01, 2022
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Charity news

BBC Lifeline Appeal for APF

November 24, 2022
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Fundraising

Barry's Walk and Cycle Challenge

October 27, 2022
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Support

Spotlight on pulmonary fibrosis in Scotland

October 10, 2022
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Research

Research Opportunity: A clinical trial treating people with idiopathic pulmonary fibrosis with the anti-acid lansoprazole (TIPAL)

October 05, 2022
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Fundraising

Great North Run 2022

September 22, 2022
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Fundraising

Gardner Family 10K Tough Mudder

September 13, 2022
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Research

REMAP-ILD: The future of clinical trials in pulmonary fibrosis

September 01, 2022
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Research

The DEMISTIFI Study: Understanding scarring (fibrosis) throughout the body  

August 28, 2022
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Fundraising

3000 Squats in October Challenge

August 19, 2022
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Fundraising

Kit's Half Marathon Challenge

August 17, 2022
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Fundraising

Sandra, Cath and Di remember Peter

August 02, 2022
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Support

Life with pulmonary fibrosis - what we've learned

August 02, 2022
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Fundraising

Go Purple for PF Awareness Month

August 02, 2022
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Research

Focus on research: clinical trials

July 29, 2022
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Fundraising

Dad and daughter duo take to the skies

July 28, 2022
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Support

Wellbeing: focus on nutrition

July 21, 2022
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Charity news

60 seconds with our President Professor Jenkins

July 13, 2022
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Support

Support group for Carers

June 28, 2022
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Support

Information and resources on current cruise line regulations in place for those on oxygen

June 24, 2022
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Support

New Support group launches in North Cumbria

June 23, 2022
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Press releases

ACCELERATING CHANGE FOR PULMONARY FIBROSIS

June 21, 2022
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Research

APF Pulmonary Fibrosis Fellowship Funding Announcement

June 21, 2022
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Research

Research Opportunity: A clinical trial for patients with chronic cough caused by idiopathic pulmonary fibrosis (IPF)

June 18, 2022
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Support

Dealing with rising energy prices

May 30, 2022
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Research

Meet APF scientist Dr Philip Molyneaux

May 28, 2022
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Fundraising

Doran sisters team up with bestseller Alison Weir for amazing event

May 27, 2022
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Support

Boundaries and Safeguarding Training for Pulmonary Fibrosis Support Group Leaders

May 26, 2022
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Research

Meet APF Conference Grant Awardee Dr Jonathon Shaw

May 26, 2022
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Research

Meet the scientist behind the research: Professor Simon Johnson

May 12, 2022
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Support

Helping you to get virtual - support group leaders learn about help to get online and use virtual platforms

April 13, 2022
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Research

Meet the scientist behind the research: Professor Louise Wain

April 12, 2022
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Press releases

One step closer for IPF patients to access life-extending anti-fibrotic drugs

March 11, 2022
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Fundraising

Tribute Night for Ronald Bee

March 01, 2022
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Research

Research Update: A clinical trial investigating a potential new drug for chronic cough in IPF

February 25, 2022
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Fundraising

Katie’s fundraising project inspired by her dad Anthony!

February 18, 2022
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Charity news

Charities urge PM to support over 500,000 immunocompromised people to live alongside COVID-19

February 17, 2022
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Fundraising

Walking tips from a pro

February 15, 2022
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Support

Living with pulmonary fibrosis and staying fire safe

January 14, 2022
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Charity news

Changes to the way patients can be prescribed pirfenidone

January 13, 2022
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Charity news

Janice Long

January 04, 2022
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Fundraising

APF Fundraiser of the Year 2021

December 17, 2021
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Support

Getting the Best out of Over-the-Phone Consultations

December 10, 2021
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Research

Getting involved in research: Pepe's story

December 10, 2021
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Support

Respiratory Nurse Nancy Howard on Coping With the Cold

December 10, 2021
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Research

Getting involved in research: How taking part in clinical trials can change lives

December 10, 2021
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Support

Planning Christmas 2021

December 07, 2021
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Support

The Role of Pharmacists

December 03, 2021
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Charity news

A week in the life of an ILD specialist Nurse

November 23, 2021
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Research

Meet APF scientist Dr Richard Allen

November 16, 2021
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Charity news

IPF: The Fight Continues

November 16, 2021
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Fundraising

Pete completes the Robin Hood Half Marathon

October 24, 2021
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Research

Covid 19 and pulmonary fibrosis research

October 21, 2021
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Research

The journey to diagnosis in patients with pulmonary fibrosis

October 21, 2021
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Fundraising

Daniel's IRONMAN Weymouth Challenge

October 11, 2021
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Fundraising

Graham Ellis - APF Fundraising Champion

October 04, 2021
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Fundraising

Why become a regular giver? Ann tells us her story

October 04, 2021
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Support

Feeling abandoned? A new Pulmonary Fibrosis Carers’ Support Group is here for you…

September 27, 2021
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Support

"Clearing the air about cough" Webinar and Q&A on managing cough symptoms

September 20, 2021
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Fundraising

Dominic's IRONMAN Challenge

September 17, 2021
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Fundraising

Timmy's 4 Peak Challenge

September 06, 2021
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Fundraising

Tracy's Miles and Mountains Challenge

September 06, 2021
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Press releases

NEW STATS REVEAL PEOPLE WITH PULMONARY FIBROSIS FEEL JUDGED FOR HAVING A PERSISTENT AND UNCONTROLLABLE COUGH

September 02, 2021
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Support

Idiopathic Pulmonary Fibrosis Poem | by Geoff Gardner

September 01, 2021
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Research

Meet the scientist behind the research: Dr Guilhem Collier

August 18, 2021
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Fundraising

Claire's Story and Why She Became a Regular Giver

July 20, 2021
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Fundraising

Louise and Jenny Doran | Fundraisers of the Week

June 14, 2021
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Charity news

Life-extending medicines accepted for use by NHS Scotland for more patients with pulmonary fibrosis

June 07, 2021
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Charity news

NICE announces anti-fibrotic review for IPF patients

May 28, 2021
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Charity news

The Impact of the Nursing Times Awards

May 11, 2021
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Support

APF launches its survey for Support Groups this week

April 01, 2021
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Fundraising

Nicole is our Fundraiser of the Week!

March 17, 2021
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Support

Wellbeing Sessions Prove a Hit

March 16, 2021
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Support

Pulmonary Fibrosis Support Group Leaders enjoy Chi-Me taster session

March 16, 2021
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Fundraising

Amelia and Dexter go walking

March 11, 2021
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Fundraising

Sophie, Leanne and Angie take on Jog on January!

March 10, 2021
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Research

APF at The British Thoracic Society Winter Meeting

March 06, 2021
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Fundraising

Sisters walking 100k

March 03, 2021
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Fundraising

Harrison's Bored to Bald!

March 02, 2021
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Charity news

TaskForce release 2 years on report

February 24, 2021
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Support

APF Spotlight on Sessions

February 11, 2021
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Research

Dr Richard Allen on "Research During Lockdown"

January 06, 2021
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Fundraising

Brierley Family December Dash | Fundraising

January 04, 2021
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Charity news

Thought For The Week #2 | with Chair of Trustees Steve Jones

January 04, 2021
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Charity news

Thought for the week | with Chair of Trustees, Steve Jones

December 24, 2020
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Fundraising

Fundraisers of the Year 2020

December 22, 2020
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Research

Meet the scientist behind the research: Dr Anna Duckworth, University of Exeter

December 10, 2020
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Press releases

"Life With IPF" Podcast Released with patient Sylvia and Honey Langcaster-James

October 10, 2020
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Support

Staying Mindful Whilst Shielding

October 09, 2020
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Research

Dr Richard Allen Answers Your Questions About PF Research

September 28, 2020
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Fundraising

Robert Hay Sets 360,000 Step Walking Challenge After IPF Diagnosis

September 18, 2020
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Fundraising

Steve Jones, Chief of Trustees Cycles 500 Miles For APF

September 17, 2020
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Press releases

Janice Long joins forces with Action for Pulmonary Fibrosis for second year running

September 15, 2020
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Fundraising

APF Sky Diving Heroes Needed

September 08, 2020
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Research

Dr Richard Allen's live webinar - Does DNA hold the key to understanding IPF?

September 03, 2020
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Charity news

How does your cough make you feel?

September 01, 2020
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Support

New lanyards alert others to respect social distancing for people with PF and carers

September 01, 2020
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Press releases

Patients call to end restrictions on drugs that prolong the lives of people with lung scarring

September 01, 2020
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Support

Inaugural Zoom meeting for the South West Peninsular was held on the 19 August 2020

August 19, 2020
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Charity news

Adjusting to change: a digital conversation with APF

August 14, 2020
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Charity news

Blackbaud Data Breach

August 10, 2020
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Support

UK PF leaders urge caution as Covid continues to ’unlock’

August 03, 2020
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Support

Carers raise concerns around the pausing of shielding

July 27, 2020
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Charity news

APF featured in The Guardian

July 20, 2020
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Charity news

Live webinar: does DNA hold the key to understanding IPF?

July 14, 2020
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Support

APF Regional Support Group Leaders Zoom Meetings Overview

July 13, 2020
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Support

Mid-Essex Pulmonary Fibrosis Group meet via Zoom on the 3 July 2020 plus an update on some fantastic fundraising activities

July 09, 2020
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Support

Sheffield Pulmonary Fibrosis Support Group - embracing technology and keeping connected during COVID-19

July 06, 2020
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Fundraising

The Great Back Garden Run 2020

June 30, 2020
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Support

Imperial Pulmonary Fibrosis Support Network Zoom Meeting 19 June 2020

June 25, 2020
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Press releases

Increase in lung scarring or fibrosis, as a result of the COVID-19 pandemic.

June 23, 2020
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Press releases

Priority for pulmonary function tests (PFT) to early stage IPF patients.

June 22, 2020
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Fundraising

Keeping fundraisers engaged

June 11, 2020
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Support

Carers Week with Dee Bryan

June 08, 2020
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Charity news

Celebrating International Nurses Day

May 12, 2020
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Fundraising

APF coronavirus appeal

April 24, 2020
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Support

New telephone service reaches out to people with Pulmonary Fibrosis

April 06, 2020
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Press releases

Action for Pulmonary Fibrosis research brings hope to IPF patients and their families

March 03, 2020
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Fundraising

A huge thankyou to our inspirational Fundraisers of the Year 2019

January 28, 2020

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