Speak up

Take action by asking decision-makers to listen to why PF care must improve.

Every voice adds to the call for better care for PF.

Click here to get involved and register today

Tell us how you want to engage with your MP and we will provide you with everything you need.

I'M TAKING ACTION

Speak Up

Take action by asking your MP to support better pulmonary fibrosis care.

Change is possible, and your feedback has shaped the improvements that will make the greatest difference for people affected by pulmonary fibrosis.

By contacting your MP, you can help them understand what living with pulmonary fibrosis really means - and ask them to support ongoing action for faster diagnosis, better support and fairer access to care. Every voice helps push for better PF care. You do not need to be an expert in healthcare policy or politics. You are the expert in your own experience, and Action for Pulmonary Fibrosis will provide the facts, wording and guidance you need.

Email your MP

Tell your MP why pulmonary fibrosis care needs to improve and ask: “Will you take action for people affected by pulmonary fibrosis?”

It only takes a few minutes. You can use our suggested wording or add your own experience to make your message more personal.

Meet your MP

MPs hold regular constituency surgeries where they meet local people and hear about the issues affecting them. Meeting your MP gives you the opportunity to share your experience directly, explain what needs to change and ask for their support to push for those changes. We will provide: a step-by-step guide to arranging and preparing for your meeting.

Our meeting pack explains how to arrange the meeting, prepare your story and follow up afterwards. There’s also a two-page APF briefing to give your MP.

Invite your MP to your support group

If you are involved in a pulmonary fibrosis support group, you can invite your MP to attend a meeting and hear directly from local people affected by the condition. The visit does not need to be formal. Hearing personal experiences and meeting people from their constituency can help an MP understand both the human impact of pulmonary fibrosis and why services need to improve.

Our support-group pack includes an invitation template, planning guidance, a suggested running order and the APF briefing for your MP.