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Healthcare professionalsSignpost Patients to Action for Pulmonary Fibrosis
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This is something we often hear from the people we support. Help us change this by signposting your patients, their families and carers directly to us.
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I wish I had heard about you sooner.
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Support for you and your patients
Signposting to us can help you deliver the best care and get the most from your clinical time.
If you have a patient who you feel would benefit from our support, please ask them to:
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Why signpost to us?
We’re here to support you to provide the best care for people diagnosed with pulmonary fibrosis, their families and carers.
We will:
- Take non-urgent queries to reduce calls to nurse phone lines.
- Support people affected by pulmonary fibrosis to be confident with self-management and rely less on healthcare professionals.
- Help people affected by pulmonary fibrosis access expert and peer support so they can better self-manage.
- Work with ILD teams throughout a person’s journey with pulmonary fibrosis to ensure cohesive and holistic support.
- Support people to access local services, including hospices, support groups and carer’s assessments.
- Be part of an ILD network, supporting healthcare professionals to advocate for the best clinical care.
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Information packs for recently diagnosed patients
When you signpost to us, we can support patients and families by providing a recently diagnosed information pack. You can also view and send digital packs online.
Supported by The Interstitial Lung Disease Interdisciplinary Network (ILD-IN), this pack brings support and information to people who have recently found out they have pulmonary fibrosis.
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The pack can help people with pulmonary fibrosis to:
- learn about the disease
- get the most from their appointments
- know where to get support
- feel like part of a community
- have their questions answered
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What’s included in the pack?
You'll find five different booklets in the recently diagnosed pack, including:
- I have pulmonary fibrosis - support for people with a recent diagnosis
- A quick guide to understanding pulmonary fibrosis
- Telling people you have pulmonary fibrosis
- Pulmonary fibrosis journal
- About Action for Pulmonary Fibrosis
In the printed version of the pack, the booklets come in a sturdy presentation folder. You can use this folder to keep your hospital appointment letters or other paperwork together.
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