4af34ac2-cc87-010b-d0ce-9e1797a4a1d3 flex-box container between col-100 0
c06f5007-41d4-9ef5-3195-0fcaa1ff1dc7 flex-box col-100 0
a521c850-b607-7bc4-8485-7e05130a42a1 col-100 0
Information
Palliative care
dcb5b404-de1d-8ee5-7e80-bfca8b711a25 flex-box container between col-100 0
f2315d5e-7bbc-276b-6374-a6138483c7cc flex-box col-50 0
4a58ecb9-e006-e7c5-49fb-b1dc830c7c95 col-100 0
Palliative care professionals are experts in symptom control and pain management. They look after the whole person, helping you have a good quality of life. Some people receive palliative care for years, alongside active disease treatment.
5aa27107-e6e8-6cd0-4d99-7dae021c4671 col-100 1
I feel better informed about the help available, and energised by taking some time for myself.
78ce1915-c5e7-5c1b-65c6-66115393b037 flex-box col-50 1
5181f36d-8e5c-0637-2004-5304e213fe9d col-100 0
922233a7-0f5f-f1a9-fddd-30fb8a3fbbcb flex-box container between col-100 0
0f713ad0-f52f-6286-a174-344ea07bde03 flex-box col-100 0
e6aaed88-45c4-317f-72c3-54530d67fed7 col-100 0
Palliative care services
cb92f678-268e-4db2-fd1d-b3c0e49662ec flex-box col-100 1
9405d8cd-3a6d-58c4-773f-dadd16f86ff4 col-100 0
Palliative care ensures that all aspects of life are cared for – from coping with physical symptoms to emotional and social support for you and your family; from advice about your finances to help with ramp applications to enable a wheelchair to be used at home.
08004d1c-47ba-e397-c617-b7a3e66ec22d col-100 1
As part of your palliative care, you can also get help with having difficult conversations with family and friends. They also provide diagnosis adjustment support for children and adults, and bereavement support.
65c0d6be-ce90-6835-663a-c5d74d2e81fd flex-box col-100 between 2
e263fcc7-5581-50b7-f3da-c672f22cf080 col-100 0
Palliative care can provide a sense of community and camaraderie with other patients, and may include:
d651c7e9-1644-3ce1-4e40-35bb8c07c7a9 col-50 1
- benefits and entitlement advisors
- counselling
- medical advice
- medication reviews
- specialist breathlessness management services
- legal advice
4e31c5d3-fec9-28a9-efc7-af539ba19746 col-50 2
- physiotherapy
- complimentary therapy
- spiritual support
- social activities
- social workers
- support groups
1d0d51ff-24e1-c292-7508-e8a26bb45af8 flex-box col-100 mrg-t-lrg 3
ab83b2ef-2030-bbe9-d129-6e3a6a8da66d col-100 0
The palliative care team
0a522714-672f-8dc6-f258-4707c8e2ee93 col-100 1
The palliative care team often includes dieticians, nurses, doctors, and therapists. They work closely with the respiratory clinical team making sure you continue to get any lung disease treatments that would benefit you.
6c4de871-7fd1-d696-9e9e-40b21c81a9e4 flex-box container between col-100 0
5b1cf92b-ff03-b7ca-6d66-5426ca174273 flex-box col-100 0
fcb2d27b-24fa-b1ef-b47b-8f79a6faaf3a col-100 0
Where you can have palliative care
e6aebc5a-e38b-a6e7-6b6c-66b80bb227eb col-100 1
You don’t have to be in healthcare facility to receive palliative care if you don’t want to. You can get help at home; as well as in hospital, in a care or nursing home or in a hospice.
At home, you might get help with symptom management as well as advice on having equipment such as a hospital bed or a stool in your shower installed.
eaad13df-e3ac-884d-c918-976af516887e col-100 2
Hospices sometimes offer a day facility where you can join music, art, gardening or book clubs as well as access specialist medical advice. Carers can benefit too, for example by enjoying alternative therapies such as reflexology.
You can also have short-term inpatient care to get support for difficult symptoms.
1c6f5556-f4f9-78d1-f25c-f1c2ee41b455 flex-box container between col-100 0
27505e0c-6fa1-f6f2-d9d2-0ee3afdbb02f flex-box col-100 0
ce375055-5038-6e2c-1a0f-7e557e9d75d4 col-100 0
When to ask for palliative care
e0e15dfd-e600-42d1-1b6d-36fafb844e06 col-100 1
Although palliative care is sometimes associated with end-of-life, you can benefit from palliative care at any time. The aim is to live as well and active as possible for as long as possible.
People can access specialist palliative care services for problems as they arise, and then be discharged as they resolve.
79b9b805-07c7-647d-4060-8fa54e58f489 col-100 2
Talk to your medical team about a referral to a hospice. You can also check with your local hospice as many accept referrals from carers and patients for some of their services or contact Marie Curie.
cd88f20f-6fb1-9884-6492-3c3fcf227017 flex-box container between col-100 0
4a356292-6065-da2c-f94e-a414f465df3a flex-box col-100 0
602a73ee-a330-cd59-8e0a-3a7234bdbeed col-100 0
End-of-life care
fabc6441-36b6-603e-6273-fd58ba6fe89e flex-box col-100 1
46058e2e-693e-5362-cbdc-0043d4d4844e col-100 0
As you near the end of your life, palliative care can help you to live as comfortably as possible in the time you have left. It involves managing physical symptoms and getting emotional support for you and your family and friends.
036bbaad-8666-76cc-c4ee-2bf16bc7c691 col-100 1
Most importantly, spending time at the hospice has helped me understand that they offer supportive care for your entire journey, not just the final moments.
2bbf2d16-1dd2-f034-7d98-0c3300d76c08 col-100 2
I would encourage everyone to engage with a local hospice, at whatever stage of illness, if only to find out what support is available along the way.
Clare, IPF patient
17f54762-5595-129b-1047-181a644ca6de flex-box col-100 2
d14d05a4-37d2-fcbf-4288-3eae4b46687a col-100 0
Did you know palliative care can help people with pulmonary fibrosis (PF) live well at any point in their diagnosis? Learn more from The Hospice of St Francis and Barry Freed, who is living with pulmonary fibrosis.
ff1451d0-49e9-3a7d-3c36-b9decc11718b flex-box container between col-100 0
71c5ca9c-ad5f-cbec-c5ac-0f85d1828c52 flex-box col-100 0
6bf9117a-2a95-926c-feeb-1278df0b5b2a col-100 0
Our website and resources provide general information only. We cannot provide medical advice, treatment or prescriptions, nor can we assess/decide what services or clinicians you should be referred to. Support with these matters will need to be provided by your existing healthcare professional teams.
APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on our website or in our resources.
Tab ID:183